Patient information is available in different languages below
Links to children’s kidney information in various languages can be found on the European Rare Kidney Disease Reference Network, ERKnet.
Links to country-specific patient information can be found below:
Deutschland

www.portal-se.de – Den Seiten des zentralen Informationsportals über seltene Erkrankungen (ZIPSE)
https://gpn.de/aktuelles/patienteninfo
France

Filliereorkid – Le réseau national des maladies rénales rares
Guide des maladies rénales rares
Italia

https://www.asnit.org – Associazione Sindrome Nefrosica Italiana
www.retedelmareitalia.it. Rete del Ma.Re. Un corpo unico d’azione delle associazioni locali
United Kingdom

InfoKID – information for parents and carers on children’s kidney disease
Rare Renal – information for patients (adults and children) on a range of rare kidney diseases
Portugal

https://www.spp.pt/conteudos/default.asp?ID=427 – Informação acerca de Doença Renal e do Trato Urinário disponível no site da Sociedade Portuguesa de Pediatria – Sociedade Portuguesa de Nefrologia Pediátrica
https://www.facebook.com/snefrologiapediatricaSPP – Página do facebook da Sociedade Portuguesa de Nefrologia Pediátrica.