Patient Information by country

Patient information is available in different languages below

Links to children’s kidney information in various languages can be found on the European Rare Kidney Disease Reference Network, ERKnet.

Links to country-specific patient information can be found below:

Deutschland

www.portal-se.de – Den Seiten des zentralen Informationsportals über seltene Erkrankungen (ZIPSE)

https://gpn.de/aktuelles/patienteninfo

France

Filliereorkid – Le réseau national des maladies rénales rares

Guide des maladies rénales rares

Italia

https://www.asnit.org – Associazione Sindrome Nefrosica Italiana

www.retedelmareitalia.it. Rete del Ma.Re. Un corpo unico d’azione delle associazioni locali

United Kingdom

InfoKID – information for parents and carers on children’s kidney disease

Rare Renal – information for patients (adults and children) on a range of rare kidney diseases

Portugal

https://www.spp.pt/conteudos/default.asp?ID=427 – Informação acerca de Doença Renal e do Trato Urinário disponível no site da Sociedade Portuguesa de Pediatria – Sociedade Portuguesa de Nefrologia Pediátrica

https://www.facebook.com/snefrologiapediatricaSPP – Página do facebook da Sociedade Portuguesa de Nefrologia Pediátrica.