Patient information by condition

Information on a range of children’s renal conditions is available in alphabetical order below.

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Alport syndrome

Alport UK

Alport Syndrome Foundation (US)

Filliereorkid (F)

Ospedale Bambino Gesù (I)

Bartter syndrome

Bartter Syndrome Foundation (US)

Filliereorkid (F)

Ospedale Bambino Gesù (I)

C3 glomerulopathy

MPGN/DDD Support Group (UK)

Cystic kidney disease

PKD charity (UK)

Filliereorkid – dominante (F)

Filliereorkid – recessive (F)

Filliereorkid – nephronophtise (F)

Ospedale Bambino Gesù (I)

Cystinosis

Cystinosis Foundation (US)

Cystinosis Foundation (UK)

MARHEA (F)

Gitelman syndrome

Gitelman Syndrome Online Resource (UK)

Filliereorkid (F)

Haemolytic uraemic syndrome

aHUS Foundation (US)

UK National Renal Therapeutics Centre

Filliereorkid STEC-HUS (F)

Filliereorkid – aHUS (F)

Ospedale Bambino Gesù (I)

Hyperoxaluria

Oxalosis and Hyperoxaluria Foundation (US)

Filliereorkid (F)

MPGN

See C3 glomerulopathy

Nephrotic syndrome

Nephcure (US)

Nephrotic Syndrome Trust – NeST (UK)

Filliereorkid – idiopathique (F)

Filliereorkid – corticoresistant (F)

Filliereorkid – corticoresistant-hereditaire (F)

Filliereorkid – congenitale-type-finlandais (F)

Assocazione Sindrome Nefrosica Italia (I)

Polycystic kidney disease

See Cystic kidney disease