The ESPN Working Group on immune mediated renal disorders
Liaison ESPN Registry: none (but can be consulted)
Liaison Council : Rezan Topaloglu
Liaison ERA-EDTA :
1) Areas of interest of the IMG-WG
Epidemiology, pathogenesis, treatment and studies of follow-up of immune mediated renal disorders.
2) Aims of the IMG-WG
Promoting Education and Training in the areas of interest of the IMG-WG
Promoting a registries of immune mediated renal disorders
Collaboration with EDTA IWG for epidemiologic studies clinical and research trials
CME Courses at the Annual ESPN Meeting.
Closely Collaborate with ERA-EDTA IWG realizing courses in which an ESPN member speaker addresses the topic in childhood
Participate at the activity of NDT Educational by sending bimonthly case reports discussed on the light of the updated literature
Explore the availability of all European Paediatric Nephrology Centres to offer to young Paediatric Nephrologists education and experience on immune mediated renal disorders (both clinical and basic or clinical research) duration from 1 to two months.
The centers willing to host young Paediatric Nephrologists must provide an expertise on immune mediated renal disorders (both clinical and basic or clinical research)
3) Other aims of the IMG-WG
Implementing recommendations/guidelines and serve as advisory board in the process of KDOQI guidelines for immune mediated glomerulonephritis
Stimulate collaborative, either basic or clinical, work to answer important issues in the field of immune mediated renal disorders
Inform and invite the Pediatric Nephrologist European Centres to participate to the studies initiated or in progress proposed by the ERA-EDTA immuno-nephrology WG.
Create a section for informations purpose on the most common immune-mediated renal disorders on the website of ESPN intended for families
IMMUNE MEDIATED RENAL DISORDERS REPORT 2014
SCIENTIFIC PROPOSALS FOR 2016-2017
1- Lupus Nephritis Patients’ Treatment Schedule & Long Term Outcomes (Coordinator R.Topaloglu) can be reached by the link
The study protocol can be reached by the excel data sheet
2- A European Registry Of Children With Henoch Schoenlein Nephritis To Detect Clinical, Genetic And Immunological Risk Factors (Coordinator Licia Peruzzi) can be reached by the link
3- Crescentic glomerulonephritis in children (Coordinator Esra Baskın) can be reached by the link
Immune Mediated Renal Disorders Working Group Survey: “CRESCENTIC GLOMERULONEPHRITIS – ESPN Survey”